miércoles, 11 de febrero de 2009

Febrero 28, 2009: Día de las Enfermedades Raras


Become a Rare Disease Day Partner

NORD is coordinating the observance of Rare Disease Day in the U.S. on February 28, 2009. On that day, and the weeks leading up to it, we will join with others around the world to conduct a variety of activities to raise awareness of rare diseases and the need for safe, effective treatments. We invite all patient organizations, companies, medical societies, and others with an interest in rare diseases and orphan products to join us in this global effort. For information on becoming a Rare Disease Day partner, write to rarediseaseday@rarediseases.org. Read more.

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